About The Neonatal Progeroid Foundation

Neonatal Progeroid Foundation was created to bring awareness to Neonatal Progeroid Syndrome (NPS), previously named Wiedemann Rautenstrauch Syndrome. Through recent research, we have learned that the syndrome occurs when there are two mutations on the PolR3A gene.

Neonatal progeroid syndrome is a rare genetic syndrome characterized by an aged appearance at birth. Other signs and symptoms include intrauterine growth restriction, feeding difficulties, distinctive craniofacial features, hypotonia, developmental delay, and mild to severe intellectual disability. Although the exact underlying cause of Neonatal progeroid syndrome is unknown, it is likely a genetic condition that is inherited in an autosomal recessive manner.

About Gabby Macari

Gabby Macari is a 7 year old girl living with Neonatal Progeroid Syndrome. Little is known about the syndrome and at the time of her birth there was only one short medical article. The part of the piece that stuck with us was the average life span of 6 months. It was a difficult 6 months, but after that 6 month’s birthday we realized that Gabby was different. She was strong, she was happy and she was, in her way, thriving. Not motivated by food, but letters and academics, Gabby was reading at the age of two. She is currently in second grade at Ellisville Elementary School and enjoys everyday getting on the bus and learning new things at school. She loves reading, dancing (ballet and tap) and pretending to be a doctor. While Gabby’s health today is fairly good, others with her syndrome aren’t so lucky and we felt a need to bring awareness to this rare aging syndrome.

The Carole King & James Taylor Story

Following a critically acclaimed sell out run at The Edinburgh Fringe Festival The Carole King & James Taylor Story comes to Forest Hills Country Club to take you on an incredible journey through the career of the six-time Grammy Award winner and twenty-time platinum hit maker Carole King and five-time Grammy Award winner & American folk legend James Taylor.

This new “show-umentary” format gives a fascinating insight into the lives behind the music.

Featuring passionate renditions of Fire and Rain, Sweet Baby James, I Feel the Earth Move, Natural Woman, You’ve Got a Friend and many more this astonishing back catalogue is realized with authenticity by Phoebe Katis and Dan Clews, both well established artists in their own right.